By Steve Larson, The Arc Minnesota Senior Policy Director
This past week was a powerful one for people with disabilities. Mikayla Holmgren, a 19-year old with Down syndrome, testified twice on SF 462/HF 439, the Prenatal Trisomy Information Act, one of our 2015 legislative priorities. At both hearings, she wrapped up her testimony by sharing that after she graduates, she will attend Bethel College in Arden Hills next school year. Due to her testimony and the testimony of her mother and other parents of children with Down syndrome, the bill passed in both the Senate and House committees.
Also this past week, the State Quality Council (SQC) funding bill, SF 902/HF 975, had three hearings. Lance Heglund, SQC Co-Chair and a strong leader in the disability community, testified twice about how our current system for ensuring service quality doesn’t incorporate his concerns and those of others with disabilities. Kurt Rutzen, self-advocate and a Public Policy Advocate for The Arc Minnesota, shared in the House hearing about the role of Regional Quality Councils and how they will help the voices of people with disabilities be heard and improve the quality of services. Their testimony helped pass these bills in House & Senate Committees.
These hearings were great opportunities for individuals with disabilities to share how proposed legislation would have a positive, direct impact on Minnesotans with disabilities and their families. One of our goals is to get individuals and family members to testify on those issues that greatly impact them, so this past week was a great success.
As we approach the first legislative deadline for bills proposed this session, there are other opportunities for people to share their testimony. On Tuesday, March 17, the House Health and Human Services Reform Committee will hear HF 1640, a bill we have been promoting that eliminates the fees parents pay for supports that help their family member live in the community. Rep. Roz Peterson is the bill’s chief author; the hearing will begin at 2:45 p.m. On Wednesday, March 18, again at 2:45 p.m., this same committee will hear HF 1790, another bill we strongly support. It would change the Consumer Directed Community Supports (CDCS) program so it provides more support for adults with disabilities to gain employment. Rep. Tara Mack is the chief author of this legislation.
The best way for everyone to participate in our efforts is to Tell Your Story. If you have not already done so, please go to our website to use the Telling Your Story app to put your story together.